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The PRIDE Study

The PRIDE Study

Why The PRIDE Study?

The PRIDE Study is the first large-scale, long-term national health study of people who identify as lesbian, gay, bisexual, transgender, queer (LGBTQ+), or another sexual or gender minority. By participating in the study over time, each participant’s unique story provides vital insights on the health and well-being of LGBTQ+ people.

PCORI funded the development of PCORnet®, the National Patient-Centered Clinical Research Network, to make it easier and more efficient to conduct research. PCORI funded The PRIDE Study/net’s participation in PCORnet from 2015 to 2019.

How does this help Improve Transgender Lives?

We can help transform healthcare by creating patient-centered outcomes research projects with cohorts large enough to be statistically relevant. The PRIDE Study offers us a unique space to implement research projects as one of the PRIDEnet community partners.

We need transgender people who can work with researchers and clinicians in creating patient-centered outcomes research projects using The PRIDE Study portal. We need clinicians and researchers who will work with trans people and parents of trans youth in developing research that meets the needs of the trans community. We need transgender people to participate in clinical studies where trans people are key stakeholders in the design, implementation, and dissemination of the research. We need each of us to serve as “trusted advocates” and enroll people in The PRIDE Study and our projects. Working together we can transform healthcare by providing evidence-based research leading to health policy action.

Webinar: The PRIDE Study

The webinar below helped launch TransFORWARD – A Statewide Transgender-Powered Research Collaborative in Texas in October, 2018. The presentation covered Ancillary Topic Research, Institutional Review Board (IRB) Processes and Requirements for The PRIDE Study. TransFORWARD is one of The PRIDE Study’s community engagement partners.

Presenters included:
Lou Weaver – TransFORWARD
Mitchell Lunn, MD, MAS – The PRIDE Study
Angela Sturm, MD FACS – TransFORWARD
John Oeffinger – TransFORWARD

This project is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EA #10671).

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