A Statewide Transgender-Powered Research Collaborative in Texas
Research Engagement Advisory Council
- Eight transgender people or parents, one from each region
- Eight medical researchers or clinicians, one from each region
- Representatives from Texas Medical Association, Texas Nurses Association, Texas Hospital Association, a mental health foundation, health insurance plans, and other organizations have been invited to serve.
- The Project Lead and 3 Project Co-Leads
- One additional staff member from Texas Health Institute and Equality Texas Foundation.
- The current WPATH immediate past president (World Professional Association for Transgender Health)
- The staff members from Texas Medical Association, Texas Nurses Association, Texas Hospital Association are non-voting members.
Patient-Centered Outcomes Research (PCOR) engagement principles
- Including patient and stakeholder partners as key personnel
- Roles and decision-making are made collaboratively
- Fair compensation
- Reasonable and thoughtful requests for time
- Committed to diversity across all activities
- Committed to cultural competence
- Researchers help patients and other stakeholders understand the research process
- Team learning about patient-centeredness and stakeholder engagement
- Patient-centeredness and stakeholder engagement incorporated into research program
- Inclusive decision-making
- Information readily share
- Commitment to open and honest communication
Council activities include
- Actively participate in two in-person meetings. The Initial Meeting will take place on Wednesday, November 28, from 9:00 am to 4:00 pm at Capital Factory in Austin, Texas.
- Actively participate in 14 monthly Adobe Connect video meetings or webinars
- Actively lead your regional hub by helping to organize the regional training, identify regional training participants, and developing a regional research engagement plan
- Provide suggestions for projects, funding, research and education opportunities, as well as, initiate important connections in the transgender and health communities
- Identify priorities and route important healthcare information to other Council members
- Contribute as needed to smaller working groups to help scale our efforts
- Provide feedback on our activities, strategies, and goals
- Travel and lodging to and from the two in-person meetings will be paid for or reimbursed at GSA and capped travel rates
- Transgender members will receive a $125 stipend or gift card per year.
- Each council member will need to provide their own computer or tablet to take part in the Zoom meetings or webinars
TransFORWARD: A Transgender-Powered Research Collaborative in Texas is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EA #10671).