A Statewide Transgender-Powered Research Collaborative in Texas

Research Engagement Advisory Council

Membership


  • Eight transgender people or parents, one from each region
  • Eight medical researchers or clinicians, one from each region
  • Representatives from Texas Medical Association, Texas Nurses Association, Texas Hospital Association, a mental health foundation, health insurance plans, and other organizations have been invited to serve.
  • The Project Lead and 3 Project Co-Leads 
  • One additional staff member from Texas Health Institute and Equality Texas Foundation.
  • The current WPATH immediate past president (World Professional Association for Transgender Health)
  • The staff members from Texas Medical Association, Texas Nurses Association, Texas Hospital Association are non-voting members.

Patient-Centered Outcomes Research (PCOR) engagement principles


Reciprocal relationships

  • Including patient and stakeholder partners as key personnel
  • Roles and decision-making are made collaboratively

Partnerships

  • Fair compensation
  • Reasonable and thoughtful requests for time
  • Committed to diversity across all activities
  • Committed to cultural competence

Co-Learning

  • Researchers help patients and other stakeholders understand the research process
  • Team learning about patient-centeredness and stakeholder engagement
  • Patient-centeredness and stakeholder engagement incorporated into research program

Transparency-Honesty-Trust

  • Inclusive decision-making
  • Information readily share
  • Commitment to open and honest communication

Council activities include


  • Actively participate in two in-person meetings. The Initial Meeting will take place on Wednesday, November 28, from 9:00 am to 4:00 pm at Capital Factory in Austin, Texas.
  • Actively participate in 14 monthly Adobe Connect video meetings or webinars
  • Actively lead your regional hub by helping to organize the regional training, identify regional training participants, and developing a regional research engagement plan
  • Provide suggestions for projects, funding, research and education opportunities, as well as, initiate important connections in the transgender and health communities
  • Identify priorities and route important healthcare information to other Council members
  • Contribute as needed to smaller working groups to help scale our efforts
  • Provide feedback on our activities, strategies, and goals
  • Travel and lodging to and from the two in-person meetings will be paid for or reimbursed at GSA and capped travel rates
  • Transgender members will receive a $125 stipend or gift card per year.
  • Each council member will need to provide their own computer or tablet to take part in the Zoom meetings or webinars

TransFORWARD: A Transgender-Powered Research Collaborative in Texas is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EA #10671).